Cerebral Palsy Definition - What Cerebral Palsy means to me

Cerebral Palsy Baby | Causes | Diagnosis | Definition | Treatment

 

What Cerebral Palsy Means to Me?

This is written by my grandmother about 4 years ago. If you want to read what I have to say and what I am doing today, read My blog

I will soon be fitted for leg braces and a wheel chair. 

I recognize other children who are like me and get real happy around them. I guess because I know I am not alone. 

I can't sit up without being propped up or without having to hold on. I can sit in a high chair and sit in a grocery buggy but I have to hold on so I won't fall over. Mama has to constantly remind me to "hold myself up." 

I said my first sentence the other day, " I want milk," loud and clear. 

I am getting into everything. I still can't crawl but I roll and scoot where I want to go. It takes me a little longer than normal babies, but I am special. 

 I think it is funny to get into something I know I am not suppose to, Grandma will move me away from the object, but I usually go right back. I laugh when I get caught. 

Pictures

picture of cerebral palsy patient nana as a baby picture
nana has cerebral palsy picture nana who has cerebral palsy with sister picture

Four years later

Cerebral Palsy means to me extra work. Things you take for granted like sitting up in a chair is hard for me. I bob. when I eat, I often put get my hair in my food sometimes even my face. My muscles in my hips pull me forward, so I have to fight this. I have to where tight fitting braces that sometimes hurt my legs and feet to be able to use the walker.  And I see lots of doctors.

Botox Injections Spasticity Cerebral Palsy

I take botox injections to paralyze some of my leg muscles to make other the other work harder. They give me about 20 shots. I have to be put to sleep for this cause they hurt real bad. I might have to have the injections in my back cause I tend to lean forward. My muscles are spastic and pull me forward. I can't help it. To learn more about how I cope today read Naudikah's blog - a day to day journal of a child with cerebral palsy.

 

Related Websites

1-800-wheelchair.com a medical supply company

LARGEST selection of DISCOUNTED Wheelchairs, Scooters, Walkers Hospital Beds, Diabetic Supplies, & Daily living aids Medicare & Medicaid Accepted

Donations to the United Cerebral Palsy
United Cerebral Palsy (UCP) and its nationwide network of over 130 affiliates strive to ensure the inclusion of persons with disabilities in every facet of society - from the Web to the workplace, from the classroom to the community.

North Carolina Missing Children

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